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0:01
hi
0:02
everyone I had a few people reach out to
0:05
me asking if the spot fund is a real
0:10
thing yes I created
0:14
it I don't like talking about my
0:19
disabilities on social media because
0:23
social media is my escape from
0:27
reality you guys don't see my disability
0:31
because it's on the screen and I can
0:33
just be normal which is why I don't
0:37
really talk about it so this is hard for
0:41
me to
0:43
finally accept that I'm
0:47
disabled
0:50
and try to be proud of it I guess in a
0:54
way I don't know I don't know anyways so
1:00
so I'm here to make a vlog to confirm
1:03
yes I did create that spot
1:07
fund my insurance won't cover a foldable
1:12
electric wheelchair that I can fold and
1:15
put in my trunk for for my
1:20
car they will cover a regular electric
1:24
whe are the big on that can't fold you
1:27
need a handicap fan for it with the ramp
1:31
I don't have
1:33
$440,000 to buy a handicap van and I
1:36
don't want a handicap
1:39
vanan I can walk and
1:43
stand but 5 minutes only maybe 10
1:48
minutes in pain before I
1:53
Collapse so because of my spine for the
1:57
last four years where it started going
2:01
downhill I haven't done anything I
2:05
haven't gone to event craft fairs
2:09
regular fairs
2:11
festivals all of that I haven't done
2:14
anything for 4 years and I miss it my
2:18
son is getting older he's 13 now we used
2:22
to do so much and now because of my
2:26
disabilities we haven't done anything
2:31
and that's why I'm
2:34
finally trying to accept I need
2:38
help I want to get out of the house I
2:41
want to do things I don't like being
2:44
isolated all the time I know my son
2:49
doesn't yeah it sucks but that's my
2:55
reality so anyways that's why I'm making
2:58
this Vlog to confirm
3:00
confirm that yes I am asking for
3:04
help my birthday is tomorrow I'm going
3:07
to be 34 years
3:11
old I want to get out of the house I
3:15
want to go places but I can't unless I
3:19
can sit there then I can
3:25
go the reason why I
3:28
Collapse so easy
3:31
have a lot of health
3:33
issues one I have sharot Marie tooth has
3:40
nothing to do with my teeth I don't know
3:43
why they came up with the weird
3:46
name um that nerve disease eats my
3:52
muscle eats my nerves my nerves are 80%
3:57
damaged they used to be 20 % damaged and
4:01
then I got pregnant and then pregnancy
4:04
caused my body
4:09
to but I'm happy I have my son he is
4:14
amazing so anyways so another issue I
4:18
have um my
4:22
spine my spine is [ __ ]
4:27
up my lower back is a c perfect
4:33
C my
4:35
vertebra the vertebra they touch each
4:39
other when I stand that causes a lot of
4:43
pain and it causes me to
4:46
collapse I don't have that disc in
4:49
between like you guys
4:52
do they can't fix it
4:56
why because I have a cyst in my spinal
5:02
cord
5:03
fluid if they inject my lower back
5:07
somehow it will piss off the cyst and it
5:11
will rupture which will cause me to
5:14
become
5:17
paralyzed it took me years
5:21
to
5:23
accept that I have a lot of limitations
5:27
now compared to 5 years ago
5:31
it really [ __ ] with your mental
5:35
health but I'm
5:37
okay all I'm asking for you guys from
5:42
you guys is donate dollar $5 $20
5:46
whatever so I can get my electrical
5:49
wheelchair and get out of the
5:53
house that's all I'm asking
5:57
for I just lay in bed all the
6:02
time do things around the house but not
6:07
long I have a social worker case work
6:11
worker that
6:13
comes they help people they they find
6:16
people to come help me clean cut my
6:19
grass shovel the
6:21
snow all of that because I can't stand
6:25
for long
6:30
I just had a major surgery back in
6:35
February that
6:37
was
6:41
off but I got through
6:44
it and now I'm stuck
6:48
again in bed because of my
6:54
spine they were hoping the surgery from
6:57
my foot would help me walk better and it
7:00
does it helps me walk a lot better but
7:05
my spine is still an issue they can't do
7:08
anything to fix it I've been to many
7:11
doctors I've been to good hospitals
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hours
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away they can't do
7:19
anything and they told me there is a
7:23
possibility one day that my cyst can
7:27
rupture on its own
7:30
and I I'm
7:37
paralyzed not looking forward to that
7:42
day but
7:44
anyways I didn't want to make a long
7:48
Vlog blabbing about all my issues but I
7:52
just wanted to explain to some of my
7:55
issues and why I need a wheelchair a
7:58
foldable Electric
8:00
cure so I'm making this Vlog thank you
8:05
all for donating
8:08
sharing
8:09
um I really hope to reach my
8:13
goal so I can get out of the house and
8:17
Vlog more on YouTube and all
8:20
that I appreciate you guys a
8:24
lot you guys are
8:27
amazing thank you for watching okay
#Neurological Conditions
#Pain Management
#Family & Relationships